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Messages 01

I'm not really sure what kind of wiki this exactly is. But, hello, I'm 20 years old and I've had CFS going on 3 years now, my name is Jonathan. I go by SmartX online. I was browsing google news yesterday when I came across an article about "new findings come from the largest clinical trial ever to focus on people with the syndrome", the syndrome being CFS.

It is worth a look.   http://www.washingtonpost.com/wp-dyn/content/article/2006/04/20/AR2006042001869.html (2005).

Messages 02

The Washington Post Link was causing problems.

Hi Kate (The Dark One 6:51 E14 Dec 2023).

I'm always Super Busy (DV 11:50 G30 Dec 2023).

I'm currently busy. I'm over 1 month late ordering some Vitamin D (DV 8:47 B26 Dec 2023). See my Diary on Cfs/Page 002 (DV 19:29 F5 Jan 2024).

There has been some discussion on my Darth Vader FB Feed (DV 12:40 A1 Jul 2024).

Msgs to Kelly Louise Smith-may, FB, Chipping Sodbury, South Gloucestershire.

I've figured out what causes CFS/Long Covid, + how to treat it. See my Website. CFS/LC is bad enough when you know how to treat it. I'm expecting some improvement Mid Dec. I made some changes for my July Treatment Cycle, but instead of being an improvement, the new regime, on the whole, has made my CFS worse. DV/CT 00:55 C16 Oct 2024 (UTC).

Will my treatment work on me? Yes. p < 1 in 64 million, last calculation (2020). Cln 2:15 C16 Oct 2024 (UTC).

Open Msg to Prof Nancy Klimas. I've also posted a copy on my LinkedIn Profile. See me-pedia.org/wiki/Nancy_Klimas.

+ a Big Welcome to You. If you haven't checked my Website, Your's Truely has figured out what causes CFS/Long Covid (2007), + how to treat it, 2005 to Present (19 yrs). CFS/LC is Chronic Human Hibernation, virtually identical to what Bears do. Part of my explanation for this is that the Immune System, Evolved out of the Hibernation System, perhaps starting 800 million years ago, when Vitamin D 1st appeared in plankton. I've been having success treating my CFS with 6 Month, High Dose, Vitamin D Pulse Therapy. p < 1 in 64 million, last calculation (2020). The pitfalls are Gnarly. Many Treatment Regimines I tried, either weren't very effective; or made my CFS Worse (4).

There is evidence that increasing relaxin concention in the blood, will increase the efficacy of my treatment.

There is more content on my Website.

Cln 4:20 E17 Oct 2024 (UTC).

Edited Msg to "Strength in Numbers", FB, Melbourne, Australia.

Numbers wasn't the problem in dealing with CFS. The Problem has been, that for decades, I've been the 1st person that's been smart enough to attempt treating CFS by experimenting with the Timing + Doseage of Vitamin D Supplements. I'm lucky that this is the type of experimentation that was needed to determine what causes CFS, + how to treat it.

The following is an approximation of my Nov 2024, 6 month Vitamin D Pulse Regime. I plan to post the exact regime, when my health (CFS) allows. I'm expecting improvement, especially starting mid Dec.

H24 Nov, 256 K. A25 Nov to G24 May 2025 (181 days); An average of 10.14 K every 2nd day, reducing to 3.05 K every 2nd day.

H25 May 2025. Repeat Treatment.

Cln 12:40 F18 Oct 2024 (UTC).

Msg to Dr Audrey Ryback, Clare Francis Research Fellow.

Welcome. Something in the Blood? I figured out it's SITB, + what it is, 2007. The short answer is 2 types of Glycosylated Vitamin D. Both are produced by the body. Their concentrations are precisely controlled. They Control Hibernation. CFS is Chronic Human Hibernation. Part of my explanation for this is that the Immune System evolved from the Hibernation System. Cln 17:45 C20 Nov 2024 (UTC).

Edited Version of Facebook Msgs, on F7 Feb 2025.

I've just had a look at her Website (Dr Sarah Myhill). It's a user friendly Wiki, similar to mine.

Dr Sarah Myhill has a Public Facebook Group. 13K Members.

My understanding is that d ribose is a type of sugar. Up until about 5 yrs ago I could handle very rich foods + seemed to have low blood sugar levels. As I've recovered from my CFS my Blood Sugar Levels seem to have risen, + I avoid rich foods, such as Chocolate + Prunes.

d ribose may be effective in treating CFS, because it raises Blood Sugar Levels.

Over the last 20 yrs my CFS has fluctuated. 4 Oct 2005, Vitamin D Level of 30 nmols/litre. Early Nov 2005, 50K/day for 10 days. 4 wks of remission, then relapse.

Aug 2007, figured out that I had more energy when my Vitamin D Levels were rising, + less energy when they were falling.

Dec 2007 to April 2008, gradual improvement. Avg hrs/day in bed dropped from about 11.0 to 10.4. May 2008 Relapse. 14.0 hrs/day in bed. My explanation is that, early Winter Sun Bathing, caused my Vitamin D levels to Drop suddenly. High Ratio of UVA/UVB. Textbook triggering of Winter Hibernation.

About 12.0 hrs/day in bed, during the NZ 2008 winter. Gradual improvement over the next 10 yrs, until I stopped going to bed. Didn't feel like it. I would feel tired so would rest in my armchair. After an hr I was too tired to go to bed, so would doze in the armchair, for maybe up to 24 hrs.

July 2015. Figured out that Vitamin D Pulse Sensitivity is a Thing. The Pre-condition is Vitamin D Levels falling for 4.5 to 6 months.

Oct 2018. Figured out that for a Vitamin D Pulse to be Effective, it needs to rise fairly steeply, say from 90 nmols/litre, to 200 over 7 to 12 days, THEN FALL.

My explanation is that there are biological pathways that specialise in detecting rising Vitamin D Levels, + others that specialise in detecting falling Vitamin D Levels, + they interact.

2019. Several 10 wk treatment cycles. Too short. Caused all sorts of problems. 2 x 4 wk recovery events. The 1st had a 4 wk delay. The 2nd had a 8 wk delay. For the 2nd recovery event I went from 0.0 hrs/day in bed to about 8.0 hrs/day in bed for 4 wks, which indicated lasting improvement from the 1st Treatment Cycle. Reverted to 0.0 hrs/day in bed, at the end of the 4 wks.

June 2020. Ran my Vitamin D levels up to 350 nmols/litre, then let Vitamin D levels drop at the natural rate of 4.03 nmols litre(-1) day(-1). This rate of drop is too fast, + caused lasting relapse for the rest of the year.

Dec 2020. Ran my Vitamin D Levels from 90 to 200 nmols/litre then let levels drop at the natural rate.

2.297 nmols litre(-1) day(-1). Too Steep. Caused Relapse for the 1st wk after the Pulse. It was cloudy that week. I sunbathed during the 2nd wk, when the sun came out, which fixed the problem. Since Dec 2020 I have never let my Vitamin D Levels drop faster than 1.034 nmols litre(-1) day(-1), which is the natural rate of drop at 90 nmols/litre.

Mid 2023. Too much Relapse. I thought that more of my recovery would last, but it didn't. I was not satisfied with the amount of Relapse, so made some changes to my Treatment Regimine (Correct Spelling. Try Google Searching "Regimine", ie enclosed in Quotes).

I have had problems with my last 2 Vitamin D Treatment Cycles, which started June + Nov, last year (2024). I would mix up to 260 Cenovis Vitamin D Tablets with some water to dissolve, then Muslei + Ensure Milk Formula. I'm suspicious that what was happening was that the Vitamin D from the Tablets, was absorbed Fast, causing Levels of Vitamin D in my Blood, to also rise fast, during the 1st 24 hrs, + then fall steeply. I'm suspicious that this steep fall, is what has been making my CFS worse.

My plan for my June 2025 Treatment Cycle, is to take no more that 60K of Vitamin D/day + no more than 10 Cenovis Tablets/day. I'm planning to take Capsules (Swisse). I'm suspicious that the rate of absorbtion from the capsules will be slower.

About 60K/day, over 6 days. This is similar to Nov 2005, when I took 50K/day, for 10 days, which worked very well.

With hindsight I realise I had mild CFS, prior to getting a lot sicker, June 2004. Every 2 days I would go for a 1 hr Bike Ride, part of which was up a Steep Hill. I would push myself such that my lungs were nearly coming out my mouth. I would feel great for an hour afterwards, then tired for the next 2 days. I didn't realise there was something wrong with my health. I was also drinking a lot of water, ie 10 litres/day. This is a symptom of CFS/Long Covid. Dr Charles Lapp mentioned this in his CFS Presentation in Nelson, New Zealand, late 2008. I have a copy on DVD.

The plan has always been to get other People to try my Experimental Treatment. Part of the holdup has been my poor health. Most days over the last 20 yrs I have been too unwell to even write down a shopping list, let alone promote my research. I've been better over the last week. The other issue, is that as recently as Dec last year (2025), I'm still having (unexpected) problems with my Treatment Regimine. Eventually I'll run out of mistakes to make. I can only identify one mistake with my Nov/Dec 2025 TR, so have confidence for June.

H8 Feb 2025.

Late 2005 I started experimenting with the Timing + Doseage of Vitamin D Supplements. I had few options. August 2007 I got lucky when I managed to figure out that for CFS Sufferers Rising Vitamin D Levels are associated with more Energy, falling Vitamin D Levels, less energy. This is Primitive Hibernation, + the Experiment which explains what causes CFS. Hibernation is linked to CFS/Long Covid/The Immune System, because the Immune System evolved from the Hibernation Sysyem. I experimented with treating my CFS Symptoms, 2008 + the 1st half of 2009. Gave up treating symptoms mid 2009, because I was concerned that if I continued to only treat the symptoms, I may never recover. Started taking a dose of about 62K, once a month. Sept 2010 I experienced a recovery event. Another Penny Dropped. If CFS is essentially Chronic Human Hibernation, it is appropriate to treat it with a 12 month Treatment Cycle. I reduced this to 6 months after the 1st year. 2019 I even tried 10 week Treatment Cycles, but this caused all sorts of problems. There is further explanation of how I developed Vitamin D Pulse Therapy, + Strength Training, to treat CFS, on my Website, EditThis.info/CFS/Main_Page, mainly Pg 001, Messages 02. Cln 9:40 H9 Feb 2025 (NZT).

Edited Facebook Messages. Start = 2:15 G21 Jun 2025 (Jun Solstice DV).

Based on my CFS/hEDS Model. 1. I don't have hEDS. 2. The Relaxin Concentration in my Blood is Low compared to Many Other CFS Sufferers (Slow + Late onset of CFS ( + typically a Poor Prognosis )). 3. The Relaxin Concentration in the Blood of hEDS Sufferers is High compared to CFS Patients. 4. Part of the Reason You, + others, have developed CFS is because the Relaxin Concentration in your Blood is High relative to the Population Average. Relaxin Concentration is Seasonal. My Shoulder has Sub-luxed during the Autumn, Winter + Spring, but from memory never during the Summer. Relaxin increases the Efficacy of my Treatment. If it is too low my Treatment won't work. My Right Shoulder started Sub-luxing 20 yrs before I developed CFS (1984, aged 24 yrs). Cln 14:15 C2 Apr 2025 (UTC).

My CFS has been better over the last 2 days. Expected Improvement, corresponding to my June to Oct (2025) Treatment Regimine, may have started 11 days late. Cln 8:25 B17 Jun 2025 (UTC).

Vitamin D Injections sound like a bad Idea. Vitamin D levels will Spike + then maybe fall suddenly. If Vitamin D Levels fall too fast at the start of my Treatment Cycle it causes lasting Relapse. This has happened several times. During May this year I took about 60K of Vitamin every day, for 7 days. Typically 3 doses of about 20K, about 6 hrs apart. My Treatment Regimine is detailed on my Website.

Vitamin D is usually sold in Capsule Form. I don't take more than 10K/day of Tablets (Cenovis). I'm planning on Posting details of the Vitamin D Dose/Response Relationship on my Website, hopefully sometime during the next 7 days. Cln 23:40 C18 Jun 2025 (UTC).

I estimate my Vitamin D levels. I could give you an estimate for any day of the year.

I had Vitamin D Blood Tests, about March 2024 + Feb 2025, + have compared the results, to my estimated Vitamin D Levels, on the day of the Test. See Dairy, Cfs/Page_002 for Details (DV 14:20 A23 Jun 2025).

Based on my model, with Vitamin D injections, Vitamin D levels will spike during the 1st 24 hrs.

My Analysis is that a Vitamin D Spike, during the 1st 24 hrs, is why my last 2-3 Treatment Cycles haven't seemed to have worked very well, or have seemed to make my CFS worse.

No. During May I took about 60K/day for 6 days, about 20K every 6 hours. 15 K at 4:00 am, 10:00 am, 4:00 pm + 10:00 pm, would be best.

My Vitamin D Blood Test has, + will probably continue to be taken between 10:00 am + 2:30 pm. Thanks for the Tip. Keep a record of the time the Blood Test was taken, + Post on my Website. I may have been doing this. Vitamin D Blood Levels may vary over a 24 hr Period.

For any one trying my Treatment Regimine, a Vitamin D Blood Test a the Start of the Treatment Cycle, when the expected Level is close to 200 nmols/l, seems essential.

A 2nd Test if the 1st is low, + a 3rd if the 2nd is inconsistent.

A Test in the Middle, + near the end of the Treatment Cycle, may also be a good idea.

A Vitamin D Test, prior to taking any Vitamin D Supplements, also seems like a very good idea.

It was discovered recently that virtually everyone that develops CFS has low Vitamin D. 80% of People who have CFS have Fibromyalgia, + 80% of People who have Fibromyalgia have CFS. This suggests that they are 2 Sub-types of the same condition. Dr Charles Lapp [110] maybe late 2008, or early 2009. [110z] Leading US CFS Specialist. (It also suggests that my Treatment will be effective in treating Fibromyalgia (DV 6:00 G21 Jun 2025)).

My CFS/Long Covid Treatment is essentially taking a large dose of Vitamin D every 6 months, then a maintenance dose during the rest of the year. My Treatment is more complex than this. The Details are on this Website.

The Secret is to Mimic what would happen if we spent sufficient time outside in the Sun, exposing lots of Skin, especially at Midday, ie our Vitamin D levels would rise fast during the Spring, then stay high over the Summer. Cln 16:15 F20 Jun 2025 (UTC).

I'm obsessed with promoting my CFS/Long Covid Research. My June 2025 treatment Regimine may have taken effect 11 days late. My CFS has been better this week.

As part of my Research I've been wanting to talk to someone who has Fibromyalgia. My understanding is that FM may possibly be best described as nerve pain. Does it involve bone pain?

I've been housebound with CFS most days since 2004. After 12 months I realised I was is serious trouble because I wasn't improving.

Most days for the last 21 yrs I've been too unwell to write down a shopping list. Consequently promoting my CFS Research has been VERY slow.

My experimental results indicate that my CFS/LC Treatment will work. Will it work on me. Yes. p < 1 in 64 million. As far as I'm aware I'm the only person in the world that has tried it. It needs to be tested on others, to determine it efficacy on the General CFS Population.

With sample size = 1, Bayes Theorem indicates that there is a 50% chance that it will be effective for 71% or more of the CFS Population. My estimate is 80% because I have always had a poor prognosis. Slow + Late onset. I also have an explanation of the link between PP + SLO. I expect my treatment will be more effective on CFS sufferers, with a better prognosis. Cln 5:25 E19 Jun 2025 (UTC).

I seem to be the only person in the world who's figured out what causes CFS + how to treat it. Figured out the cause 2007. Its taken 19 yrs (2005 to 2025) to figure out how to treat it. You're welcome to give my Treatment a try. The details are on this Website. Cln 10:10 E19 Jun 2025 (UTC).

I've been having success with Vitamin D Pulse Therapy. I've spent 19 yrs developing my treatment. Follow this Website. Will it work on me. Yes. p < 1 in 64 million.

Medical Discoveries are Universally Ignored. I mention this at the beginning of this Website.

No. That is the probability that my results are random. ie the probability that my treatment will work on me is a near certainty.

Most days for the last 20 yrs, I have been too unwell to write down a shopping list, so have been limited in my ability to promote my research.

My Model of CFS/Long Covid is that it is Chronic Human Hibernation, virtually identical to what Bears do.

Based on my Model, treating with B group vitamins, is barking up the wrong tree. Yuppie Flu is dismissive.

I'm planning to better explain the evidence supporting my hypothesis that CFS/Long Covid is Chronic Human Hibernation, as my Health Allows + Post it on this Website.

Some CFS/LC Symptoms are Evolved Survival Responses linked to Hibernation.

It could be tried on an Animal that hibernates, eg a Hedgehog, or even a Hamster.

My last 2x 6 month Treatment Cycles have made my CFS worse, but I believe I've figured out why. Expecting improvement after 5 Jun, 11 days time.

I'm still housebound. I was better between Jun 2023 + Jun 2024.I've been working on my Treatment for 19 yrs. It's ready to go now.

There is evidence that increasing Relaxin Concentration in the Blood, would increase the efficacy of my Treatment.

A Hormone. A Google Search +/or Wikipedia will explain it. Under researched. There are 6 types + 1 subtype. It is only known what 2 types do.

Is it used at present? Not that I'm aware. A higher incidence of Joint Dislocation is an Issue. It may be possible to avoid this with more Relaxin Research. 20% of CFS patients, myself included, suffer recurrent joint dislocation. My shoulder dislocates once every 1-3 yrs.

It may be possible to find, or develop a drug, such as Suramin, that will kick an Animal, or CFS Patient, out of Hibernation.

Many Medical Discoveries don't revolve around DNA Technology. H. Pilori + a low GI diet to treat T2 Diabetes, are 2 examples. Antibiotics to Treat Stomach Ulcers caused by H. Pilori.

Healthcare is essentially free in NZ. CFS Sufferers, myself included, are eligible for a Supported Living Payment of $NZ400/wk. The NZ Pension for a Single Person, living alone, is $NZ 550.00/wk. Eligible at age 65 yrs.

CFS/Long Covid costs the US Economy $US360 billion/yr. Cutting funding is not a clever move.

The problem with CFS Research isn't a lack of money, it's that it's totally dysfunctional.

Effective CFS/LC research can be carried out relatively cheaply, if you know which tree to bark up.

A good early step would be to see how many Subtypes my Treatment is effective in treating.

Dr Patrick Soon Shiong has plenty of Money. His net worth on Google ranges from $US 2.4 to $US 21.2 billion. He has stated that his 2 priorities are Cancer + CFS/LC Research.

Tired with CFS. So far low efficacy on my latest treatment cycle.

Prof Ron Davis has been aware that CFS/Long Covid is "Similiar" to Hibernation (Dauer) since 2016. I go further in proposing that CFS/LC is essentially Chronic Human Hibernation.

At the same time he proposed developing treatments that target Dauer. This is exactly what I have been doing over the last 19 yrs. I seem to be 19 yrs ahead of anyone else.

The Penny Dropped 2007. 4 reasons that CFS/LC is essentially hibernation.

Vitamin D pulse Therapy indicates this. 1. I'm not aware that any one else in the world has researched VDPT, to the necessary extent, that I have. 2. I'm working with experimental results, that no one else in the world seems to be aware of, or is interested in, so have been able to develop a Model for CFS/LC which is a long way ahead of anyone elses. 3. Some CFS Symptoms seem to be evolved hibernation survival responses. 4. Part of my CFS/LC Model is that the Immune System evolved out of the Hibernation System, possibly starting 100's of Millions of Years ago.

My CFS has been better over the last 2 days. Expected Improvement, corresponding to my June to Oct (2025) Treatment Regimine, may have started 11 days late. Cln 7:20 B17 Jun 2025 (UTC).

I would have keep trying to develop an Effective Treatment for CFS/Long Covid until I ran out of ideas. CFS/LC usually doesn't kill you but it takes your life away. At the rate I was improving, not developing an effective treatment seemed like a death sentence. I have been highly motivated.

Eventually everyone will realize that I have developed an Effective Treatment for CFS/Long Covid.

One of the many problems with CFS Research, + Medical Research in General, is Researching things that are already known.

Some of the Symptoms of CFS, are Evolved Survival Responses, Linked to Hibernation, eg PE Fatigue/Malaise (PEM), Daytime Somnolence + an Overactive Bladder.

If a CFS Sufferer Takes 8,000 Units of Vitamin D every 2nd Day, 4 weeks on, 4 weeks off; they will have more energy when their Vitamin D Levels are rising, + less when they are falling. This is Primitive Hibernation. The other part of my argument is that the Immune System evolved out of the Hibernation System. Hibernation gives a Colony of Cells 2 advantages against Cancer + Pathogens. Watch this Space.

Edited Facebook Messages. Finish = 13:20 G21 Jun 2025 (DV).

H29 Jun 2025. Facebook Post + Comment.

Today’s thought: A slim chance is better than no chance at all.

xxxxx you are a Genius. Me too. Welcome to the Genius Club. Have you seen my LinkedIn Homepage. From Day 1 I have made the Claim that I am a Genius. I haven't seen anyone else on the Internet making this claim. Did you know that you were a Genius? You are only the 2nd Genius that I have ever Met. The 1st was one of my Lecturers at Canterbury University, Final Year 1981. A Talented Person can hit targets that no one else can reach. A Genius can Hit Targets that no one else can see. Bk = "The Hidden Habits of Genius". Your Quote is good Marketing for my "Market Ready Effective" CFS Treatment. Everyone thinks it has a Slim Chance of Success. It doesn't. My estimates for its chance of success are 66, 75, 83 + 93 %. If no one else tries it, Mankind will never know what % of the CFS/Long Covid Population it would have been effective for. If no one ever tried anything, you + I would currently be running around on the African Plains, chasing Antelope. It's a Big Call to say something has a Zero chance of Success. Neither the Probabilty of Winning Lotto, or that a Bacteria causes Stomach Ulcers, is Zero. My Treatment has a Zero Chance of Success if a CFS/LC Sufferer doesn't try it. Because CFS/LC Sufferers seem to be such Experts on my Treatment, I may ask some what they think the probability of my Treatment working on them would be. Cln 7:50 H29 Jun 2025 (UTC).

 

 

Keywords

Lasting Recovery (See also Page_002 [SAP2.] (DV 6:35 A23 Jun 2025).)
Lasting Relapse  [SAP2]

Recovery [SAP2]
Relapse  [SAP2]

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