Cfs/Main Page
Chronic Fatigue Syndrome
URL Shortcuts : wikisite.info and wikisite.info/cfs
If you want to know what causes CFS/Long Covid, + how to treat it, you read it here 1st. Cfs/Page 002 Cfs/Page 003 Cfs/Page 004 Cfs/Page 005 Cfs/Page 006 Cfs/Page 007
“There are three stages of scientific discovery: first, people deny it is true, then they deny it is important. Finally, they credit the wrong person” – Billy Bryson.
Bachodi.in (DV 3:25 B24 Dec 2024).
The other Critique I heard, possibly on New Zealand National Radio, of Making a Scientific Discovery, was that there are 3 Stages; 1st you are Ignored; Then You are Ridiculed; + Finally Everyone Accepts it as Obvious (DV 23:05 F7 Feb 2025).
Forum subject : Chronic fatigue, chronic fatigue syndrome (CFSz), Long Covid, and fibromyalgia. Effective CFS/Long Covid Treatments (2). Strength Training, but 90% 6 Month, High Dose, Vitamin D Pulse Therapy (6MHDVDPTz) (DV 11:26 H24 Dec 2023).
This Page Last Edited: See below page. To view the latest changes, select history (above page) + the 2 versions you are interested in.
Page Last Visited : (DV 23:00 F7 Feb 2025) See Date/Time Last Edited. ref a760_02_CW.txt
Speculation
Science Thrives on Speculation (DV 11:10 F21 Feb 2025).
Future Plans
More Content, especially explaining the Foundations of my 6 Month, High Dose, Vitamin D Pulse Treatment Regimine. I still haven't explained my TR properly (DV 19:35 C12 Feb 2025). The reason for the Delay in Posting Content, is my Poor Health (CFS). For the last 20 yrs, most days, I've been too unwell to write down a Shopping List (DV 11:00 F21 Feb 2025).
LinkedIn Premium
Currently my LinkedIn Account won't upgrade to Premium. Fixing the Problem, isn't No 1 on my Priority List (DV 6:40 A17 Feb 2025).
Forum Contents
9 Pages (pgs 001 to 007 (Protected)+301,302(Open)).
Pg 001 (Protected)
This page. WikiSite.info/Cfs/Main_Page
Pg 002 (Protected)
Click here to go to Cfs/Page 002.
Diary (DV 8:26 C27 Dec 2023).
Pg 003 (Protected)
Click here to go to Cfs/Page 003.
Treatment Plans in terms of Vitamin D Targets; Jan, Jun, + Dec 2024; + Jun 2025 (5-6 months) (DV 13:40 C12 Feb 2025).
Pg 004 (Protected)
Click here to go to Cfs/Page 004.
Treatment Plans in terms of Vitamin D Supplements to take. 2024 + 2025 (DV 13:50 C12 Feb 2025).
Pg 005 (Protected)
Click here to go to Cfs/Page 005.
Post at M.E. Awareness NZ group on G11 May 2024, re Quality CFS/Long Covid Research, + associated discussion.
Pg 006 (Protected)
Click here to go to Cfs/Page 006.
Vitamin D Pulse Therapy Explained. Some Content. Watch this Space (DV 13:40 F21 Feb 2025).
Pg 007 (Protected)
Click here to go to Cfs/Page 007. No content yet (DV 18:10 A17 Mar 2025).
I'm planning, to Post a C Program, which I use for Calculating Vitamin D Doseages. It has been well tested (DV 18:10 A17 Mar 2025).
Pg 301(Open)
Open Version of WikiSite.info/Cfs/Main_Page Click here to go to Cfs/Page 301. No Content as at 15:55 G30 Dec 2023. If required I'll create more Open Pages.
Pg 302(Open)
Click here to go to Cfs/Page 302. No Content as at 15:55 G30 Dec 2023.
It's Something In The Blood
Hi Ron. I figured out it was Something In The Blood + what it is in 2007. The short answer is 2 types of Glycosylated Vitamin D. Possibly the same 2 chemicals which control Bear Hibernation. I'm interested in knowing their half lives (DV 08:00 G30 Sept 2023, 11:45 C12 Feb 2025).
Long Covid
Re Prof Warren Tate, University of Otago, New Zealand. W is on the record as stating that "Long Covid is Virtually Identical to CFS" (DV 4:10 B24 Dec 2024).
Explanation
Golgi/Hibernation Hypothesis. Watch this space (CT 6 June 2010). CFS is Chronic Human Hibernation, virtually identical to what Bears do. Part of my explanation for this, is that our Immune System evolved out of our Hibernation System, possibly starting about 800 million years ago. Vitamin D first turned up in plankton about this time. Bears don't sleep for 4 months during the Winter. Winter is more a time of reduced activity (DV 7:07 H10 Dec 2023).
Treatment
Strength Training, + Vitamin D Pulse Therapy, are effective treatments for CFS. I'll explain, what I've done, in due course. They may also be effective for preventing, + treating other medical conditions, especially VDPT, eg Fibromyalgia, Anorexia, Irregular Heart Beat, Itchy Ear Canal, etc.
Strength Training
Unless there is a good reason why not, Strength Training is something every CFS Sufferer should try. My experience was that I instantly felt better. My expectation is that if it will make you feel better, you will know immediately (DV 15:25 C12 Feb 2025).
Strength Training may be Effective for 10% of CFS Sufferers. Jan 2006. It certainly didn't cure my CFS, but made me feel 10x Better. I discovered this when I did some squats for a sore knee. The improvement lasted for 24 hrs, so I started split training, exercising above the waist one day, then below the waist the next. After 6 months, the effect was permanent. Modulates the Immune System. Prior to Strength Training I was Restless. I could never get comfortable. I'd feel like lying down, then when I did I'd still feel uncomfortable, + want to get back up. I felt the same way when I was 8 yrs old + had a Stomach Viral Infection (DV 9:00 G22 Feb 2025).
Experimental Treatment
Methylation cycle block treatment: See [1]
[101z] me-net.dds.nl/meweb/cdcfacts.txt : Non-interactive, rated list of treatments for CFS. The ratings are not 100% accurate (CT, 31 Jan 2006).
remedyfind.com : Interactive, rated list of over 100 treatments for CFS ( 29 May 2006 ).
Vitamin D
I'm planning to post some of the risks involved, in using Vitamin D, to treat CFS. Watch this space ( CT, C13 Sept 2023).
See [102] and pdrhealth.com.
Using Vitamin D, to treat CFS, is not identified at [101].
[103] : Definative Website on; using Vitamin D to treat CFS; and Vit D generally. Read this site if you are considering, or planning to treat your CFS with Vit D.
Symptom Treatment
Watch this space. Involves taking Vitamin D supplements, 4 weeks on, 4 weeks off, ie 8K IU (Internatioal Units) every 2nd Day, for 4 weeks; then stopping for 4 weeks; then repeat (DV G20 Sept 2023).
Vitamin D Pulse Therapy
Treatment Description: 6 Month, High Dose, Vitamin D Pulse Therapy. The pitfalls are Gnarly. 6MHDVDPTz treats the underlying cause of the condition. If you have CFS +/or Fibromyalgia, it is 100x better to try the latest version of this treatment, rather than do nothing. There is evidence that increasing relaxin concention in the blood, will increase the efficacy of this treatment. Watch this space (DV A09 Oct 2023).
Another Long Story Short.
If you measured the Vitamin D levels in your Blood, once/day, for a year; + plotted the results, you have just just drawn a Wave. The Shape of this Wave can be manipulated by taking calculated amounts of Vitamin D, on certain dates, again calculated, eg day 1, day 2 ... day 156, day 157. It has taken 18 yrs to develop this Treatment. I started late 2005. This is the way to Treat CFS/Long Covid. I estimate my Vitamin D Levels (DV 11:30 B9 Jul 2024).
External Links
[103z]: cfs-recovery.org (R, 2005).
I've viewed this site, at Archive.org, this year. A home page capture, from about 2010, is probably a good place to start. CFS sufferer, Frank Jenner, noticed, that sunlight exposure, made him feel better. What he didn't figure out, is that the reason, was increasing Vitamin D levels, in the blood. CFS sufferers symptoms are better when their Vitamin D levels are rising, + worse when their Vitamin D levels are falling. This is primitive hibernation. I'll explain why hibernation, + the immune system, are linked, in due course (DV G16 Sept 2023).
` ME-Pedia.org/wiki/Phonix_Rising (G16 Sept 2023).
Recommended Site. Cort Johnson. Less Smartphone friendly than this site. Bios of World Leading CFS Reasearchers + Clinicians.
Comitato ME CFS/Maria Pia Cavalet (Facebook). A "Friend" of Darth.Vader.822072, FB (DV 20:14 F5 Jan 2024).
HealthRising.org (G16 Sept 2023).
Cort Johnson. Smartphone friendly.
[ 10z] en.wikipedia.org/wiki/Chronic_fatigue en.wikipedia.org/wiki/Chronic_fatigue (5 Oct 2005).
anzmes.org.nz anzmes.org.nz : Has a good described list of 35 CF links (31 Jan 2006).
dmoz.org dmoz.org : Has a described list of 169 CF web sites (31 Jan 2006).
[102z] en.wikipedia.org/wiki/Vitamin_D en.wikipedia.org/wiki/Vitamin_D (5 Oct 2005).
Immunesupport.com Immunesupport.com : Largest ME/CFS site on the web (5 Oct 2005).
Chronic Fatigue Syndrome : Information, news, doctor authored articles, research and more at The Environmental Illness Resource (5 Oct 2005).
"Race to Solve ME/CFS". Public Group. 4.1K Members (B26 Sept 2023).
"CFS Vitamin D Pulse". Public Group. Currently I'm the only Member (B26 Sept 2023). Name changed to "Effective CFS Treatments (2) Group" (DV 7:43 B6 Feb 2024).
Whitney Dafoe's Facebook Page. Interactive. Top Stuff. Search "Whitney Dafoe Facebook" (DV 14:30 B21 Nov 2023).
"Help Find a Cure for Whitney Dafoe + CFS Awareness."
RECOMMENDED. Janet Dafoe's Facebook Group (Whitney Dafoe's Mother) (DV 7:57 B21 Nov 2023).
Janet Dafoe is Tetchy. She deleted a post where I claimed that I had beaten her Husband, Prof Ron W. Davis to figuring out an explanation for CFS (2007). It's not a comment which helps his Fund Raising. It's a shame because my response to public comments was robust (DV 11:54 H31 Dec 2023).
Glossary
Rz : Recommended Website. PCMz : Pub Med Central
NZTz : New Zealand Time.
NZz : New Zealand.
Forum Contributors
DVz/Clnz,CTz : Darth Vader/Colin Tait, Auckland, New Zealand (Forum founder, + Administrator). BE Mech(1982), 1st Class Honours, Cant, New Zealand.
Last Visited :
Web Presence
Facebook.com/Colin.Tait.9235.
Facebook Search Colin Tait/Darth Vader/Lord Vader/James Kirk, Auckland, New Zealand. My 4 Facebook Profiles.
To receive Postings related to CFS,eg Major +/or Relevant Updates to this site, Friend Request my Darth Vader Profile (DV 11:06 H24 Dec 2023).
If your Friend Request is rejected, try again. On rare occasions I hit the Remove Button by mistake. If you are Blocked, resubmit a Friend Request using a Different Profile (DV 14:38 C3 Jan 2024).
Facebook Profiles have a Maximum of 5,000 Friends. My understanding is that if my Darth Vader Profile reachs this limit, you will automatically become a follower. If you want to Post, join my "Effective CFS Treatments (2) Group", or Post on Page 301 of this Forum (DV 15:40 E23 May 2024).
I'm planning to;
(1) Save Artwork rather than Share (b121, d121);
(2) Save Posts (b101,b111,d101,d111); and
(3) Save + Delete 90% of my Feed @Colin Tait (Darth Vader), Facebook, Auckland, New Zealand (DV 17:13 E14 Dec 2023).
(4) I haven't decided what I'll do yet, but it probably involves tagging posts (DV 11:44 C3 Jan 2024).
LinkedIn (DV 6:25 G9 Dec 2023).
e : DarthVaderNZ02@gmail.com (DV 19:20 F5 Jan 2024).
Personal Website : WikiSite.info/Colin_Tait/Main_Page. 4 Pages (1 Open).
Footnotes
Reserved Footnotes
[1] 4 12, etc
Messages 01
I'm not really sure what kind of wiki this exactly is. But, hello, I'm 20 years old and I've had CFS going on 3 years now, my name is Jonathan. I go by SmartX online. I was browsing google news yesterday when I came across an article about "new findings come from the largest clinical trial ever to focus on people with the syndrome", the syndrome being CFS.
It is worth a look. http://www.washingtonpost.com/wp-dyn/content/article/2006/04/20/AR2006042001869.html (2005).
Messages 02
The Washington Post Link was causing problems.
Hi Kate (The Dark One 6:51 E14 Dec 2023).
I'm always Super Busy (DV 11:50 G30 Dec 2023).
I'm currently busy. I'm over 1 month late ordering some Vitamin D (DV 8:47 B26 Dec 2023). See my Diary on Page 002 (DV 19:29 F5 Jan 2024).
There has been some discussion on my Darth Vader FB Feed (DV 12:40 A1 Jul 2024).
Msgs to Kelly Louise Smith-may, FB, Chipping Sodbury, South Gloucestershire.
I've figured out what causes CFS/Long Covid, + how to treat it. See my Website. CFS/LC is bad enough when you know how to treat it. I'm expecting some improvement Mid Dec. I made some changes for my July Treatment Cycle, but instead of being an improvement, the new regime, on the whole, has made my CFS worse. DV/CT 00:55 C16 Oct 2024 (UTC).
Will my treatment work on me? Yes. p < 1 in 64 million, last calculation (2020). Cln 2:15 C16 Oct 2024 (UTC).
Open Msg to Prof Nancy Klimas. I've also posted a copy on my LinkedIn Profile. See me-pedia.org/wiki/Nancy_Klimas.
+ a Big Welcome to You. If you haven't checked my Website, Your's Truely has figured out what causes CFS/Long Covid (2007), + how to treat it, 2005 to Present (19 yrs). CFS/LC is Chronic Human Hibernation, virtually identical to what Bears do. Part of my explanation for this is that the Immune System, Evolved out of the Hibernation System, perhaps starting 800 million years ago, when Vitamin D 1st appeared in plankton. I've been having success treating my CFS with 6 Month, High Dose, Vitamin D Pulse Therapy. p < 1 in 64 million, last calculation (2020). The pitfalls are Gnarly. Many Treatment Regimines I tried, either weren't very effective; or made my CFS Worse (4).
There is evidence that increasing relaxin concention in the blood, will increase the efficacy of my treatment.
There is more content on my Website.
Cln 4:20 E17 Oct 2024 (UTC).
Edited Msg to "Strength in Numbers", FB, Melbourne, Australia.
Numbers wasn't the problem in dealing with CFS. The Problem has been, that for decades, I've been the 1st person that's been smart enough to attempt treating CFS by experimenting with the Timing + Doseage of Vitamin D Supplements. I'm lucky that this is the type of experimentation that was needed to determine what causes CFS, + how to treat it.
The following is an approximation of my Nov 2024, 6 month Vitamin D Pulse Regime. I plan to post the exact regime, when my health (CFS) allows. I'm expecting improvement, especially starting mid Dec.
H24 Nov, 256 K. A25 Nov to G24 May 2025 (181 days); An average of 10.14 K every 2nd day, reducing to 3.05 K every 2nd day.
H25 May 2025. Repeat Treatment.
Cln 12:40 F18 Oct 2024 (UTC).
Msg to Dr Audrey Ryback, Clare Francis Research Fellow.
Welcome. Something in the Blood? I figured out it's SITB, + what it is, 2007. The short answer is 2 types of Glycosylated Vitamin D. Both are produced by the body. Their concentrations are precisely controlled. They Control Hibernation. CFS is Chronic Human Hibernation. Part of my explanation for this is that the Immune System evolved from the Hibernation System. Cln 17:45 C20 Nov 2024 (UTC).
Edited Version of Facebook Msgs, on F7 Feb 2025.
I've just had a look at her Website (Dr Sarah Myhill). It's a user friendly Wiki, similar to mine.
Dr Sarah Myhill has a Public Facebook Group. 13K Members.
My understanding is that d ribose is a type of sugar. Up until about 5 yrs ago I could handle very rich foods + seemed to have low blood sugar levels. As I've recovered from my CFS my Blood Sugar Levels seem to have risen, + I avoid rich foods, such as Chocolate + Prunes.
d ribose may be effective in treating CFS, because it raises Blood Sugar Levels.
Over the last 20 yrs my CFS has fluctuated. 4 Oct 2005, Vitamin D Level of 30 nmols/litre. Early Nov 2005, 50K/day for 10 days. 4 wks of remission, then relapse.
Aug 2007, figured out that I had more energy when my Vitamin D Levels were rising, + less energy when they were falling.
Dec 2007 to April 2008, gradual improvement. Avg hrs/day in bed dropped from about 11.0 to 10.4. May 2008 Relapse. 14.0 hrs/day in bed. My explanation is that, early Winter Sun Bathing, caused my Vitamin D levels to Drop suddenly. High Ratio of UVA/UVB. Textbook triggering of Winter Hibernation.
About 12.0 hrs/day in bed, during the NZ 2008 winter. Gradual improvement over the next 10 yrs, until I stopped going to bed. Didn't feel like it. I would feel tired so would rest in my armchair. After an hr I was too tired to go to bed, so would doze in the armchair, for maybe up to 24 hrs.
July 2015. Figured out that Vitamin D Pulse Sensitivity is a Thing. The Pre-condition is Vitamin D Levels falling for 4.5 to 6 months.
Oct 2018. Figured out that for a Vitamin D Pulse to be Effective, it needs to rise fairly steeply, say from 90 nmols/litre, to 200 over 7 to 12 days, THEN FALL.
My explanation is that there are biological pathways that specialise in detecting rising Vitamin D Levels, + others that specialise in detecting falling Vitamin D Levels, + they interact.
2019. Several 10 wk treatment cycles. Too short. Caused all sorts of problems. 2 x 4 wk recovery events. The 1st had a 4 wk delay. The 2nd had a 8 wk delay. For the 2nd recovery event I went from 0.0 hrs/day in bed to about 8.0 hrs/day in bed for 4 wks, which indicated lasting improvement from the 1st Treatment Cycle. Reverted to 0.0 hrs/day in bed, at the end of the 4 wks.
June 2020. Ran my Vitamin D levels up to 350 nmols/litre, then let Vitamin D levels drop at the natural rate of 4.03 nmols litre(-1) day(-1). This rate of drop is too fast, + caused lasting relapse for the rest of the year.
Dec 2020. Ran my Vitamin D Levels from 90 to 200 nmols/litre then let levels drop at the natural rate.
2.297 nmols litre(-1) day(-1). Too Steep. Caused Relapse for the 1st wk after the Pulse. It was cloudy that week. I sunbathed during the 2nd wk, when the sun came out, which fixed the problem. Since Dec 2020 I have never let my Vitamin D Levels drop faster than 1.034 nmols litre(-1) day(-1), which is the natural rate of drop at 90 nmols/litre.
Mid 2023. Too much Relapse. I thought that more of my recovery would last, but it didn't. I was not satisfied with the amount of Relapse, so made some changes to my Treatment Regimine (Correct Spelling. Try Google Searching "Regimine", ie enclosed in Quotes).
I have had problems with my last 2 Vitamin D Treatment Cycles, which started June + Nov, last year (2024). I would mix up to 260 Cenovis Vitamin D Tablets with some water to dissolve, then Muslei + Ensure Milk Formula. I'm suspicious that what was happening was that the Vitamin D from the Tablets, was absorbed Fast, causing Levels of Vitamin D in my Blood, to also rise fast, during the 1st 24 hrs, + then fall steeply. I'm suspicious that this steep fall, is what has been making my CFS worse.
My plan for my June 2025 Treatment Cycle, is to take no more that 60K of Vitamin D/day + no more than 10 Cenovis Tablets/day. I'm planning to take Capsules (Swisse). I'm suspicious that the rate of absorbtion from the capsules will be slower.
About 60K/day, over 6 days. This is similar to Nov 2005, when I took 50K/day, for 10 days, which worked very well.
With hindsight I realise I had mild CFS, prior to getting a lot sicker, June 2004. Every 2 days I would go for a 1 hr Bike Ride, part of which was up a Steep Hill. I would push myself such that my lungs were nearly coming out my mouth. I would feel great for an hour afterwards, then tired for the next 2 days. I didn't realise there was something wrong with my health. I was also drinking a lot of water, ie 10 litres/day. This is a symptom of CFS/Long Covid. Dr Charles Lapp mentioned this in his CFS Presentation in Nelson, New Zealand, late 2008. I have a copy on DVD.
The plan has always been to get other People to try my Experimental Treatment. Part of the holdup has been my poor health. Most days over the last 20 yrs I have been too unwell to even write down a shopping list, let alone promote my research. I've been better over the last week. The other issue, is that as recently as Dec last year (2025), I'm still having (unexpected) problems with my Treatment Regimine. Eventually I'll run out of mistakes to make. I can only identify one mistake with my Nov/Dec 2025 TR, so have confidence for June.
H8 Feb 2025.
Late 2005 I started experimenting with the Timing + Doseage of Vitamin D Supplements. I had few options. August 2007 I got lucky when I managed to figure out that for CFS Sufferers Rising Vitamin D Levels are associated with more Energy, falling Vitamin D Levels, less energy. This is Primitive Hibernation, + the Experiment which explains what causes CFS. Hibernation is linked to CFS/Long Covid/The Immune System, because the Immune System evolved from the Hibernation Sysyem. I experimented with treating my CFS Symptoms, 2008 + the 1st half of 2009. Gave up treating symptoms mid 2009, because I was concerned that if I continued to only treat the symptoms, I may never recover. Started taking a dose of about 62K, once a month. Sept 2010 I experienced a recovery event. Another Penny Dropped. If CFS is essentially Chronic Human Hibernation, it is appropriate to treat it with a 12 month Treatment Cycle. I reduced this to 6 months after the 1st year. 2019 I even tried 10 week Treatment Cycles, but this caused all sorts of problems. There is further explanation of how I developed Vitamin D Pulse Therapy, + Strength Training, to treat CFS, on my Website, EditThis.info/CFS/Main_Page, mainly Pg 001, Messages 02. Cln 9:40 H9 Feb 2025 (NZT).
Time
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Forum History
5 Oct 2005 Forum started, at Openwiki.com : Chronic Fatigue.
12 pgs of handwritten, & 28 pgs of typed content waiting to be scanned. Progress has been at snails pace because I have CFS myself (DV 22 Oct 2005).
25 April 2010. Forum shifted from Openwiki.com to cfsme.wikispaces.com.
14 Nov 2014 to G9 Sept 2023. Forum offline. Wikispaces started charging + I couldn't figure out how to pay the subscription. On 31 Jan 2019 the whole site was taken down.
H10 Sept 2023. Forum posted at CFS.Fandom.com. I had a BU copy stored at GMail.
B12 Sept 2023. Forum shifted to EditThis.info/CFS/Main_Page. 10x better than F.c.
A17 Mar 2025. Forum shifted to WikiSite.info/CFS/Main_Page, hosted by Namecheap.
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